The waiter immediately had the manager come out and explain how careful they are not to have cross contamination. (neither of us has had Chinese good in 3 years since my DX). What Non-Gluten-Free Restaurants Do You Trust…and Why? I don’t know how you do it. I just didn’t feel well at all. Finally a place where I'm not viewed as 'weird' or 'fanatic' about food. I do wonder how common this is. For me, it usually takes 12-24 hours for my body to reject gluten, and I mean REJECT it. Hi Ps I’ve also never asked them to make me food. She was just biopsied for Celiac this week and it’s looking promising that she is going to be diagnosed – so, she’s freaking out right now. But just won’t be going back. It usually takes 2-4 days to get over the effects. I am lifted from my moody mornings into hope for our future in a healthy community as I read your lines and the comments they generate. 1) Our servers ring in the dish as Gluten Free which prints on the kitchen ticket and alerts the staff that the dish has an allergy associated Or expect that a chain restaurant offers some kind of automatic safety. Back at the one closest to my parents’ house which I’ve eaten at for years (at least 50+ times) my husband and I have never gotten sick at, however there are several others that are in the regions I travel to for work that I know better to even go to because the staff does not do as good of a job preparing gluten-free items. Celiac Disease & Cross-Contamination: Tips and Tricks. This community makes a person feel like they are apart of a larger family. EnteroLab test positive for gluten intolerence and 2 gluten intolerence and celiac genes, DQ2 and DQ3 sub type DQ7 in December 2005. You just create gluten everywhere don’t you? I’ve run into this a few times. You've given me some hope. Thank you! The waitress looked surprised, but she said ok – good for you for being proactive! I hope this information is helpful in restoring your confidence in P.F. At this point I was salivating in anticipation of a great marinara. Your posts are the most relatable to my own journey that I have found. On the menu it says shrimp OR scallops I think, but I ask them to give me both mixed. This soup with carrots and green onions is great for a night in or when you're feeling a bit under the weather. There’s only one thing I can have at PF Changs now. I always get sick. I called the manager and he was just as clueless. . Every time I see the PF Chang’s frozen food entree commercial on TV I just want to yell “WHY CAN”T YOU MAKE A GLUTEN FREE PRODUCT” for freezer/home consumption! Your take on things is amazingly refreshing. C’mon, everyone gets sleepy after a big bowl of pasta!”….I felt my hubs and friends take a collective breath in as I summoned the calm I would need to tell this kid why he was wrong on about 5 different levels. I will go to PF Chang’s in Winter Park, Fl and have this far had goo experiences. A couple of weeks ago, excited to go, my husband and I ate at P.F. But, the Palo Alto, CA location is ok. Just be careful of sushi. Due to popular demand, we have created this page to assist those who like to dine out at restaurants but need to follow a very strict gluten free diet. The seriousness, the comedy, the information, all of it has helped me transition as smoothly as possible. 14135 La Grange Rd. FYI, the Chocolate Dome is loaded with eggs. i am sorry. Anyhoo, GD, I’ll send you some aloha vibes right now. My husband has Celiac disease and your blog is a life saver. Thank you for responding. I appreciate you, Dude!!! 60462 (708) 675-3970 He proceeded to stay in the bathroom for about 45 minutes. I have eaten at Chipotle and gotten sick, you have to be careful of cross contamination. Our only difference was the egg drop soup (which I will add was brought out by a runner and not our server who was excellent). And then I heard that PF Chang’s, which has a location just a few miles from my house at the time, had a gluten-free menu. And I've never found the need to call ahead. One of my college roommates is about to host a friend who is gluten-free and vegetarian, I helped her find some recommendations around Hartford from this site - was very helpful to have places already posted, gluten-free (except unintentionally) from 7 Dec 2007, 3 gluten-free cousins and counting (1 gold standard, 1 pos blood/no endo, 1 self/dietary diagnosed), suspect mother was celiac (also, cousin suspects my mother's twin is celiac), Feb 08 testing 'normal range' for gluten antibodies, IBD and food allergies. Will This Gluten-Detector Become a Celiac’s Best Friend? yes, not getting sick if I get glutened is a definite problem for me. Eating out is definitely a risk. Guest Relations I just don’t want to lose the one place where I feel like a normal patron – not a weirdo, picky, fad-diet eater trying to make the waiter and chef’s lives miserable. You are a hilarious breath of fresh air when I feel like no one (except my mom) understands. You make me smile, you make me cry, and you make me mad. Food Allergy Accommodations Start at … This is an old post … and yet so current. sometimes my food is brought out on regular plates and not the special plates. Response: Our gluten free menu is safe for someone with celiac disease. I tried really hard to hold it together, but eventually tears started tumbling down my cheeks. I hope I see you on the Patients. If I didn't do hours of meditation and watch way too many life coaching YouTube videos, I'd probably not have retained it. What Do I Do? The staff at P.F. It might give them a hint. Mine is in raising awareness about CD so that people get diagnosed properly so they can stop dying a slow death and get back to living. P.F. Have had better luck at the one in Marlton, though. . After that night, they totally reevaluated, made some more changes, and I have been safe at their house ever since. Going out to eat and feeling normal is such a rare treat. I directed to your blog from my twitter feed at work (yep, I work at PF Chang’s…). Even my friends who aren’t GF like them, and like the idea that they are protein rather than starch. 2 comments on “ Eating Corn Free At PF Chang’s ” Laurie May 25, 2014 at 12:46 am. It also means that I have to question ingredients when ordering off a g/f menu, and can’t believe some of the info I get sometimes! I’ll stick to my special dessert as take out only from here on out. THE ONLY WAY TO KEEP TRUE “GLUTEN FREE” IN RESTAURANTS IS TO BE STRICT AND DEMAND HIGHER STANDARDS OF THEM. I do however believe the answer to this evergrowing “issue” is to get into those small places near by. The “local” PF Chang’s has no clue what I’m referring to with that. Find out where and how food is prepared, and if it seems iffy, give it a miss. I had a lava chocolate cake at a great restaurant near me, from a gluten-free menu, that was served warm with a scoop of coconut ice cream. Since having numerous blood tests to check my antibody levels and 2 endoscopies, I’ve really gotten much more strict about what I eat and am eating out much less. The one I go to in Beachwood, OH is very careful, just like the one you described in FL. Just back from my first overseas trip since cd 2years. Newly diagnosed with Celiacs last May, PF Changs was one of the first places I ventured out to a few months into this new life as well…. Begged my husband to take to the er. My diet is not only GF, but I cannot tolerate many other ‘chemicals’ (a/k/a seasonings, dyes, and preservatives). As much as I hate to hear that, I think she may be right. The PF Changs I went to is the one in Princeton. I just discovered your blog and am enjoying it so far. IHOP Now has Gluten Fr…………iendly Pancakes. I think there is too much that can go wrong when they start packaging your food for you. Orland Park Crossing. One time, my food came out on the wrong plate. She took good care of us. The August gathering is at an Indian restaurant and, after checking their on-line menu, was amazed to see that most of it is gluten-free! Also the Singapore street noodles are very good, but my and all of my friends' absolute favorite is Chang's Spicy Chicken, and you can actually ask them to mellow out the flavor. Nice touch! Chang’s? Sensitive celiacs would certainly react to this amount of cc, especially if they don’t wash them thoroughly which, as a former waitress, I know most places never do! Brett92, Saturday at 02:04 AM This is the only site that has the most credible and the most knowledgeable information on how to handle the disease and the community who promote products as being gluten free. wow everything sounds so good, thanks for the help...we will be going to the one in Natick ma. Again, no matter how great a restaurant’s “policies” may be, your putting your health in the hands of a kid usually. LOL! I’ve sworn off so many chains at this point, I had to read what you said about it when I saw it on twitter. My closest PF Chang’s has been nothing short of awesome to me, so far. I know a lot of their dishes are high in fat and very high in salt, but it shouldn’t make me feel this bad. When I just want to scream from frustration, this is the place I come to find joy, peace, positive thinking, sarcasm, laughter, frustration and the will to keep moving forward and to know I have another day of healing behind me. They’ll keep making dishes gluten free that aren’t really gluten free because they can charge a premium and keep the masses believing they’re eating healthier while us with the real problem really will have NO where safe to go. Thank you for your blog. The next two times have been fine. I really don’t like most of the GF rice and corn noodles. Not just stomach stuff, but neuro misery and so, eating out to me is like playing Russian Roulette. Like the OP, I will not be back. Hopefully they will come to you later and apologize, I have had one person do that. As a person with celiac disease (gluten intolerance), I salute them. I am a “quick responder”–meaning, if there is trace gluten, I’ll know it very soon. Ate something sketchy earlier or after that caused it? I get ill from tempura, soy, sushi vinegar, imitation crab. Celiac.com Community Latest Posts RSS Feed. If you order online your food will have a pink allergy sticker on it, just make sure you write your allergies/state you have celiac in the notes section. If you were that concerned, you should have asked for a manager or just got up and left. instead, the person ordering has to say, “no seasoning, no croutons, no___” etc. Petition to young folks to open up GF restaurants!!! It was on the right plates (I asked, although they weren’t red, except for the sauce). First…a little PF Chang’s history. The corporate office contacted me via Twitter and we spoke on the phone today. Chang’s. All anecdotal. I assure you, I would never use this term to describe myself. However, this past weekend my family went there again and this time the waitress was not as friendly or helpful. I might even go back and ask them to do minimal salt next time, if possible. The wife is the Celiac and they go and talk to restaurant owners in depth to set these events up. Really pissed me off too! It's an awesome place. I was very surprised at how many places offer up a gluten-free menu....they realize it's an untapped market that is very lucrative. You make a huge difference by bringing us all together in this celiac/coeliac “family”. Ever. You have created a place where we can let it all hang out, and just be ourselves. Im sorry GF Dude. I’ve checked the PF menu but it had too many variables, so I’ve passed on it for now. Sorry to hear. And, as for this statement: Continued use is acceptance of our Terms of Use, and Privacy Policy. Thanks Gluten Dude. It is a great support system for me, being that I am alone most of the time. Here’s the scoop – hydrolyzed or fermented products can not be measured for … but they don’t. I took a mouthful of heaven. I also know when I’m glutened, and this was definitely one of those times. I was seated at the end of the long table when you first went in the back room, my hubby was there too. Eleyn. They vary tremendously. I LOVE PF Changs! Gluten Dude, you really have impacted our two year ride with Celiac Disease. This is something I am unfamiliar with and would appreciate knowing Dee, that is awesome that a manager is involved in that way. Enjoy! It is amazing. Hey Dude, http://www.clydesrestaurantgroup.com. Sorry to those individuals that have had bad experiences. I want to thank you for everything that you have done to make me feel more comfortable about eating gluten-free. I will forever be grateful for people like you and the rest of the amazing gluten free community. After he was done his training, he called me up and asked me to walk him through kitchen safety for celiacs so that he could be sure nobody gets “poisoned” (his word) on his shifts. The Managers of the PF Changs in Metairie La. (I am allergic to eggs) They had burgers with gluten free buns and the fries without incident- they are the only place I am comfortable saying by name! I think for restaurants its different it just varies by place. BE CAREFUL eating out anywhere. But, most of all, you make me grateful that I don’t have to figure this all out on my own. Chang's gluten free sauces: chicken broth, oyster sauce, rice wine, sugar, water, wheat free soy sauce and white pepper. Totally feeling the “alien about to explode from my gut.” One of my first meals out tonight (after being on the Fasano Diet for over 6 months)! If there is someone with little experience in the kitchen of a particular location, I wouldn’t trust my meal to come out unless a manager and head chef knew about my problem and oversee it in the kitchen. (Umm sorry for the yelling that’s about to happen) GLUTEN ISN’T JUST BREAD!!!!! So for my birthday, I made reservations for the family at the closest (40 minutes away) Chang’s. While dining there with my family and niece who is legume allergic, we learned that the sweet potato is “wrapped in foil and THEN has oil applied to it” this made Hubby realize that they MUST deep fry the sweet potatoes. I just realized that you will be going to the one in Natick...that's where I ate. All DH people are Celiac but luckily not all Celiacs get DH. Most of their entrees have some form of dairy where it cannot be made without it. So I can’t see any other way to eat out than by taking the time and the responsibility to try determine whether a restaurant is safe for me to eat or not. They have an amazing dessert too...the chocolate dome. Tell her to hang in there though — it get’s easier & at some point she will just have to try her very, very best but not stress about it. I never made it to Ruth Chris Steakhouse the other night, and I am relieved actually. We do not use any MSG in our food. It’s not my first time to pay a quick visit this web site, i am browsing You have brought us laughter, information and a safe place to rant and vent. I’ve never eaten at P.F. We no longer visit any PF Changs and that is so sad. For the local Phoenix people: True Food and Nourish, always safe. :/ All of my savings have gone to buying gf restaurant food, ways to function when they don’t let us use amenities with or without abuse, and doctors appointments while I had my insurance. I’ve been gluten free for over a year and your blog was the first one that made me feel normal for a celiac. When I first heard about PF Changs I was thrilled. That was the only place that I could actually go out to eat. I am a well educated researcher on celiac disease; because not only was I diagnosed 4 years ago, so was my husband. But that’s just not the way it is and I just can’t waste any more time grieving that idea. However, I’ve had bad experiences with both. Nope, I eat eggs regularly. Wow. Best practice is complete avoidance. From the moment I walked through the door, I felt comfortable that they understand the serious nature of celiac. I am in muscle diseases as well, and menopause from time to time. I imagine they put regular soy sauce. I have been there more than a handful of times since my diagnosis and I’ve never gotten sick. Like you, Gluten Dude, I was very hungry, did not have my GF food kit with me, and hunger clouded my judgement. The site is very easy to use too. I am always scared at restaurants even though they have a GF menu – doesn’t mean the people in the kitchen understand cross contamination. Why should I believe a couple of people posting on the internet that they think they were “glutened” by a restaurant with a great gf protocol? I will have to call the restaurant and ask some questions. Could have been a hundred other things. I react to white vinegar, like I react to grain vodka, and some will have their iGg levels spike with white vinegar without any noticeable symptoms at all. I’ve always had a horrid experience at the Atlantic city PF Changs. I noticed there are 2 Julie’s, this is the one way out in the Pacific. I don’t know what is up with that – seriously, it is baffling to me If they go as far to have a GF Menu, they should by all reasoning be the safer options out there- for me unforunately this has not been the case .. They have a fabulous, full Italian menu, served out of two (2) yes, I said TWO, kitchens. Many of PF Chang's gluten free meals are identical to options on the regular menu (minus the gluten, of course! And when that finally clicked I started getting better. Last year we thought the steak was very spicy–and my hubby can handle spice, but he thought so as well. Chang’s China Bistro. Chang’s logo plate so that the server is aware that the dish is Gluten Free. But given the incredibly good protocols put in place by this company, it is just extremely remote. You have given me a better outlook to living with celiac. You are like tonic to the gut, bubbling with humorous dialogue to cure the sad soul of any celiac needing attention. I am so very sorry to hear you went through this even though it was a couple years ago! Sorry but that’s how the world turns. In regards to the recent experience in Princeton, this is certainly not something we take lightly. I disagree that people with celiac should be responsible for investing a great deal of time and maybe money into sorting out whether restaurants are safe or only pretend to be to attract new customers. I’m in Utah and can’t eat at out PF Chang’s either. I look forward to hearing the real voices of the folks who comment here. I just wanted to say thank you, for being the only RELIABLE voice out there (that I've found). Ended up with a green salad with half a quarter of a tomato and no dressing. Well, one thing for sure, I’ll never eat at the one in Princeton, NJ! From everything I have read about the company and from my own experience (and many other celiacs who report good experiences there on celiac.com) PF Chang’s is one of them. This place feels to me the same way walking into the back door of my childhood home does...acceptance and understanding from my people! Once my roommate & I ordered Pei Wei to go. Blessings to you both ❤️❤️, http://patient.info/forums/discuss/celiac-s-family-spousal-abuse-544413. They figured it out. I thought it was the dust from all the work, then I thought maybe I was hungry. Thanks. We have alerted our Director of Culinary as well as our Regional Vice President in the area. Chang’s follow strict guidelines when it comes to gluten-free dishes….my fear is that the more people who have problems with it – they may decide to pull the gluten-free menu entirely. And there are “trolls” don’t share too much, it is very creepy closely monitored. TMI: but needless to say we had to rush back to our hotel so I could change my underpants. They put a a lot of salt in their food, probably from the soy sauce and I don't eat much salty food. It could be due to the fact I also noticed a decline in the service generally as well. I too have had meals brought on the wrong plate and my husband always insists they go back because he has seen me suffer even if a naive waiter says its GF. Gluten Dude, I’m sorry PF Changs made you sick! The shrimp in lobster suace is VERY good. So much so my hubby has depression now and is starting to pick up their bad behavior. Anyway the dinner was free and I did not get sick, but it was SCARY. Thank you from the bottom of my heart. What a relief to find what you are doing here. I think we’ll give P F Chang’s a skip…. 1) GF soy sauce comes in a red ramekin. We know it isn’t easy going out in public, but our research has shown that there are a […] I only tolerate apple cider and rice vinegars. I must have drunk a gallon of water trying to quench my thirst. I don’t eat out often. PF Chang has always been good for me. She always leaves a generous tip for the server and makes a point to thank management for the opportunity to enjoy her visit with her friends. That is sad to hear! Some restaurants have even offered to plate her meal or heat it up for her. I have mentioned I have had the wrong plates/dishes brought out. This myth of wheat based sauce being safe keeps popping up again and again despite the fact that it is scientifically invalid, and that the vast majority of celiacs react to it. I’m supposed to meet some friends at Changs tonight and just went online to find out whether they have gluten free options….and found this thread! (Kind of like what California Pizza Kitchen has done with their gluten-free pizza.) I called the restaurant the next day and spoke at length to the manager, and he was upset bc they take their gluten menu very seriously and offered to send me some coupons. Unlike local restaurants that do it on premise. I just want to say that you rock. WE had a great experience and an awesome waiter who knew that our happiness was making his tips :-), but I try to avoid soy now as I realize it’s also a trigger for me. You've got such a talent for storytelling, infectiously. It seems a lot of celiacs simply cannot handle their food. “The following ingredients are used in P.F. It means that you have an autoimmune disease and should consider treating the entire issue. Why the hell not? Their establishment is 100% GF–new equipment that has never touched a grain of gluten. For those who don’t understand this, PF Chang’s has a different plate for their gluten-free dishes, which I love. Chang’s offers a casual dining atmosphere to experience authentic Chinese food & Asian cuisine. Here in cairns am yet to find a good Chinese. I’ve been burned by trusting “gluten free” dish labeling, especially at Asian restaurants using such ingredients. You cannot imagine what she has gone through to keep it running, sacrificing herself in ways that are truly heroic. I learn more from you than from the dozens (hundreds?) I got the Garlic Chicken and Broccoli. Even found a noodle at the bottom of my chicken and broccoli once. Hello Dude, I tried it a couple of times and got sick each time. This is already happening. Everything you discuss is so spot on. I am just starting month three of a gluten free lifestyle after finally being diagnosed with celiac disease and your blogs have helped to educate me (and my family) and put things in perspective. Thanks again for the feedback. This probably won’t boost your spirits, but I RARELY eat out and if I do, it’s only at 1 or 2 places that I’m 95% sure the chefs are on top of creating a GF dish. They were ridiculously busy. I had the ginger chicken a year ago and felt awful after it. All Rights Reserved. Nutritionist said to avoid. I have been gluten free for over 10 years. They are now completely off my list. You have to learn to be persistent and ask all the questions , and yes explain the differences of the two ailments. We live in one giant shared facility–the planet Earth. I changed my name to distinguish us. Many celiacs have secondary food sensitivities, so its a possibility. At my location they have the managers bring out the gluten free food, as well as any food that is allergy-related (they all come on those different plates.) Will watch it carefully from now on. View HONcode Certificate. As always, offered IMHO–feel free to ignore. That night, I did NOT feel well at all and for the whole week following. When the manager learned it was my first time there, he came over and introduced himself and gave me a gift card. I get hot flashes and dumping syndrome from soy oil, soy protein (tofu), raw soy beans (edamame), and “non allergen” soy oil, that chipotle uses (even if I order the GF menu items at that place, I still have issues). The chemical could be sulfiting agents. He was very nice but I still don’t know what the stabbing pain was from. boycott the place? Firm, witty and honest. Lame Advertisement Test positive for gluten intolerence in Sept 2005. But, EVERY time I eat out anywhere (that’s like three places) I always worry whether I will be sick. PF Chang's is one of the few restaurants with a gluten-free menu available. They just see me continue to get skinnier and try to force feed me. I feel terrible about not offering an invitation back. I just ate at a PF Changs in Northern Virginia a few weeks ago and was excited that it was “safe.” Sounds very hit or miss. Hey Gemini, I'd love it if you would post your 'awesome' places in Mass & RI for all to review! I showed the manager the 3 fortune cookies that had been put in my GF take out bag- WTH? Does P.F. Keep up the good work. I have had some in depth conversations with two separate managers, one in LA, and one up here in Emeryville, and the training they get on Gluten Free is really astounding considering that they are a national chain. I agree, but she wanted to know that she will have options when she has to travel again (which may not be for several months). But we won’t be back to PF Changs anytime soon. (a rare, smart doc that was!). Are there any national restaurants where you do feel safe? Any suggestions?? This website has made a significant impact on me. No later than a week I had over $200.00 in gift cards from them. I have celiac disease, but I do not suffer any longer, now that I am not dying from the disease process. DQ2 Celiac gene test 9/11, ALLERGY: "positive" blood and skin tests to wheat, which triggers his eczema '08, ENTEROLAB testing: elevated Fecal Anti-tissue Transglutaminase IgA Dec. '08. And after that? This just makes me sad beyond words. me again…just wanted to click the notify me of followup comments. The waitstaff were very knowledgeable about celiac disease so that's a huge plus. And yes, I’m quite sad about it. Thank you, from the bottom of our celiac guts, for your time and keeping us informed. what you think this could be. Finding this website was like walking into a house full of old friends and family for me. 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